"I don't feel shy because I will be among others who are just like me. . .": The role of support groups for children perinatally infected with HIV in Zimbabwe: The role of support groups for children perinatally infected with HIV in Zimbabwe

  • Zivai Mupambireyi
  • , Sarah Bernays
  • , Mutsa Bwakura-Dangarembizi
  • , Frances Cowan

Research output: Contribution to journalArticlepeer-review

43 Citations (Scopus)

Abstract

As access to paediatric antiretroviral therapy (ART) continues to improve in sub-Saharan Africa, a new historically specific cohort of HIV-perinatally infected children surviving into adolescent has emerged. Although remarkable successes have been made clinically in keeping this cohort alive and in reasonable health, their social support experiences are still unknown. The research being reported here sought to explore peer social support experiences of HIV-perinatally infected children in Harare, Zimbabwe. In this article, we draw on 56 repeat in-depth interviews (IDIs) conducted in three phases and two focus group discussions (FGDs) with HIV-infected children (11-13. years). Additional interviews were held with 10 carers. Study findings suggested that both children and carers perceive support groups as a safe social space for learning and acquiring HIV information as well as gaining confidence. Additionally, findings highlighted the importance of consistency of participation. Structural and personal barriers to access and participation in support group were also identified. We conclude that support groups are a useful resource for HIV-infected children and therefore should be supported by stable funding.
Original languageEnglish
Pages (from-to)106-113
Number of pages8
JournalChildren and Youth Services Review
Volume45
Issue numberC
DOIs
Publication statusPublished - 1 Jan 2014
Externally publishedYes

Keywords

  • Children
  • Coping
  • Perinatal HIV infection
  • Social space
  • Support groups

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